J-A-C-K.org

Joining Against Cancer in Kids

Useful Articles

Here is a number of articles and links relating to information you may find useful

New Hope for Children with Neuroblastoma
The TODAY show’s “Shine a Light” campaign and the American Cancer Society fund promising research for childhood cancer.

 

American Childhood Cancer Organization (formerly Candlelighters)
Toll-free number: 1-855-858-2226
Website: www.acco.org

Offers information for children and teens with cancer, their siblings, and adults dealing with children with cancer. Also offers books and a special kit for children newly diagnosed with cancer, as well as some local support groups.

Children’s Oncology Group (COG)
Website: www.childrensoncologygroup.org

Provides key information from the world’s largest organization devoted to childhood cancer research to help support children and their families from the time of diagnosis, through treatment, and beyond. Also has a searchable database to find the COG center closest to you.

CureSearch for Children’s Cancer
Toll-free number: 1-800-458-6223
Website: www.curesearch.org

Provides up-to-date information about childhood cancer from pediatric cancer experts. Has sections on the website for patients, families, and friends to help guide them on how to support the child with cancer.

National Cancer Institute
Toll-free number: 1-800-4-CANCER (1-800-422-6237)
TTY: 1-800-332-8615
Website: www.cancer.gov

Provides accurate, up-to-date information about cancer for patients and their families, including clinical trials information. Offers a special booklet for teen siblings of a child with cancer at: www.cancer.gov/cancertopics/when-your-sibling-has-cancer.

National Children’s Cancer Society, Inc.
Toll-free number: 1-800-5-FAMILY (1-800-532-6459)
Website: www.children-cancer.org

Services include an online support network for parents of children with cancer, educational materials, and financial assistance for treatment-related expenses.

Starlight Children’s Foundation
Toll-free number: 1-310-479-1212
Website: www.starlight.org

Website has animated stories and interactive programs to teach kids about chemo and procedures that may be done in the hospital; also has videos specifically for teens and provides a safe, monitored online support group for teens with cancer.

Group Loop (a subsite of the Cancer Support Community just for teens)
Toll-free number: 1-888-793-9355
Website: www.grouploop.org

An online place for teens with cancer or teens who know someone with cancer to connect with other teens – away from the pressures of classes, responsibilities, and treatment schedules. Has online support groups, chat rooms, information, and more.

SuperSibs! powered by Alex’s Lemonade Stand
Toll-free number: 1-866-333-1213
Website: www.supersibs.org

Supports, honors, and recognizes 4- to 18-year-old brothers and sisters of children diagnosed with cancer so they may face the future with strength, courage, and hope. Alex’s Lemonade Stand is restarting SuperSibs in 2014 so there may be some delays with resuming support services.

Jack Brown

Jack Brown
Emergency Grant for Neuroblastoma FamiliesFunds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma

An Emergency grant is available for Neuroblastoma families facing financial loss or increased costs because of Coronavirus measures.

Funds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma (low, intermediate or high-risk), who face financial loss or increased costs due to the Coronavirus pandemic.

Guidelines have been issued by the Children’s Cancer and Leukaemia Group asking that families of children and young people on active cancer treatment, or within 6 months following the completion of treatment, stay at home for the next 12 weeks. These guidelines are being reviewed and updated on an ongoing basis. This is in line with the government guidance.

Parents / Guardians who are self-isolating alongside the child and that suffer financial loss or increased costs as a result may apply to the emergency fund for an initial grant towards their immediate subsistence costs.

Emergency grants of £250 are available now for those who are facing financial loss or increased costs as a result of the need of their child to stay home for the stated 12 weeks.

Additional support may be made available at a later stage for families facing acute financial loss because of the rapidly evolving public health crisis.

Criteria for accessing the grant is as follows;

  • You are the guardian of a child with Neuroblastoma (low, intermediate or high-risk) who is currently in active treatment, or within 6 months following the completion of treatment (at the point of application).
  • You have suffered financial loss or increased costs as a result of the need to self-isolate with your child which cannot be remedied by the emergency measures in place which can be found on the government website which is being continually updated. Also here.

To apply for the £250 emergency grant simply complete the form below and submit it by email to familygrant@solvingkidscancer.org.uk along with a copy of a letter or other documentary evidence from your Clinician or Medical institution which provides evidence of the active treatment of your child or treatment within the last six months (of the date of application).

We, at JACK, are thankful for the ability to provide money alongside SKC to the emergency fund for families. We are grateful to Solving Kids Cancer UK for administering the process and applications for the grant must be made via the email to Solving Kids Cancer.