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Joining Against Cancer in Kids

Nuclear protein causes neuroblastoma to become more aggressive

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From: MedicalXpress.com Aggressive forms of neuroblastoma contain a specific protein in their cells' nuclei that is not found in the nuclei of more benign forms of the cancer, and the discovery, made through research from the University of Rochester Medical Center (URMC), could lead to new forms of targeted therapy. EYA1, a protein that contributes to ear development, is present in the cytoplasm of many neuroblastoma tumors, but this protein migrates to the nucleus in the cells of more … [Read more...]

Children’s Neuroblastoma Cancer Foundation Fundraiser Sept. 20 in Chicago

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Originally posted in Daily Herald Children’s Neuroblastoma Cancer Foundation During Childhood Cancer Awareness Month, neuroblastoma, an aggressive childhood cancer, will be the focus of the #20forhope social media campaign created to raise research dollars and awareness of a disease more common in infants than leukemia but sorely lacking in funding. On Tuesday, Sept. 20, people everywhere -- best buddies, neighbors, co-workers, dance troupes and cast members -- are being … [Read more...]

Kian Musgrove Update

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From: Mirror Little Kian Musgrove flew back out to New York at the weekend as US medics desperately try to find a way of saving the four-year-old. A family has been left with fresh heartache after a sick four-year-old boy's body rejected life-saving cancer-killing treatment in America. The news has come as a massive blow after Kian and mum Kat Driscoll only returned from America days ago. The money for the family’s travel came from music mogul Cowell, who was moved by Kian’s fight against … [Read more...]

Eliza Donnelly Support

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From Western Telegraph: A Newport couple is hoping to raise £60,000 to fund treatment for their two-year-old daughter, diagnosed with a rare form of childhood cancer. Eliza Donnelly was diagnosed with stage 4 Neuroblastoma in July. This is a rare cancer of specialised nerve cells, diagnosed in less than a 100 children a year in the UK. In Eliza's case the cancer has spread throughout her body and into her bone marrow. They spent most of the summer in Noah's Ark Children's Hospital where … [Read more...]

Chad Carr Movement Accelerating Childhood Brain Cancer Research

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Gifts in memory of Chad Carr, grandson of former Michigan football coach Lloyd Carr, will help Michigan scientists to fight the deadly DIPG tumor Chad battled.   Newswise — ANN ARBOR, Mich. – As Chad Carr fought brain cancer in the hospital wing named for his grandfather at C.S. Mott Children’s Hospital, he united and galvanized the Michigan community. Chad, the grandson of former Michigan football coach Lloyd Carr, died at age 5 in 2015, 15 months after his diagnosis, but not before … [Read more...]

Children’s Neuroblastoma Parent Medical Conference

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CHICAGO, July 11, 2016 /PRNewswire/ -- The only family education and medical conference focused solely on the latest treatments and clinical trials for neuroblastoma, an aggressive childhood cancer whose primary victims are infants and toddlers, returns July 14–17 to the Westin Hotel in Lombard, Illinois. Sponsored by the Children's Neuroblastoma Cancer Foundation with generous support from United Therapeutics Corporation, the annual conference brings families together with the country's leading … [Read more...]

What is Neuroblastoma?

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What is Neuroblastoma? Mainly affecting children, neuroblastoma is a relatively rare cancer of the sympathetic nervous system — a nerve network that carries messages from the brain throughout the body. Each year about 600 children in the United States will develop neuroblastoma. Generally developing in young children, it accounts for half of all malignancies in infants. These solid tumors, which take the form of a lump or mass, commonly begin in one of the adrenal glands, though they can also … [Read more...]

14:18 Full interview with Dr. Maris

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Neuroblastoma: New Hope for Kids -- In-Depth Doctor's Interviews John Maris, M.D., Chief of the Division of Oncology at the Children’s Hospital of Philadelphia, talks about a new type of immunotherapy for neuroblastoma that offers the first substantial cure rate of the cancer in more than 10 years. What is neuroblastoma? Dr. John Maris: Neuroblastoma is a childhood cancer. It is a disease that affects young children. The average age of diagnosis is about 18 months, so these are … [Read more...]

Jack Brown

Jack Brown
Emergency Grant for Neuroblastoma FamiliesFunds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma

An Emergency grant is available for Neuroblastoma families facing financial loss or increased costs because of Coronavirus measures.

Funds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma (low, intermediate or high-risk), who face financial loss or increased costs due to the Coronavirus pandemic.

Guidelines have been issued by the Children’s Cancer and Leukaemia Group asking that families of children and young people on active cancer treatment, or within 6 months following the completion of treatment, stay at home for the next 12 weeks. These guidelines are being reviewed and updated on an ongoing basis. This is in line with the government guidance.

Parents / Guardians who are self-isolating alongside the child and that suffer financial loss or increased costs as a result may apply to the emergency fund for an initial grant towards their immediate subsistence costs.

Emergency grants of £250 are available now for those who are facing financial loss or increased costs as a result of the need of their child to stay home for the stated 12 weeks.

Additional support may be made available at a later stage for families facing acute financial loss because of the rapidly evolving public health crisis.

Criteria for accessing the grant is as follows;

  • You are the guardian of a child with Neuroblastoma (low, intermediate or high-risk) who is currently in active treatment, or within 6 months following the completion of treatment (at the point of application).
  • You have suffered financial loss or increased costs as a result of the need to self-isolate with your child which cannot be remedied by the emergency measures in place which can be found on the government website which is being continually updated. Also here.

To apply for the £250 emergency grant simply complete the form below and submit it by email to familygrant@solvingkidscancer.org.uk along with a copy of a letter or other documentary evidence from your Clinician or Medical institution which provides evidence of the active treatment of your child or treatment within the last six months (of the date of application).

We, at JACK, are thankful for the ability to provide money alongside SKC to the emergency fund for families. We are grateful to Solving Kids Cancer UK for administering the process and applications for the grant must be made via the email to Solving Kids Cancer.