Joining Against Cancer in Kids, J-A-C-K.org, Mission Statement

Joining Against Cancer in Kids, J-A-C-K.org, Mission Statement

Provide advice and support for children and families wishing to undertake innovative or experimental, (clinical trials), treatments for Neuroblastoma

To assist children and their families by providing advice and support relating to their wish to participate in the medical treatment of Neuroblastoma. Such treatments, which are of relevance are those treatments not yet available within the United Kingdom but which are in trial in reputable hospitals elsewhere. The support will include financial aid in order that treatment costs can be paid. The charity is not the arbiter of the nature of any such therapy or its likely success or the risks associated with such; the family and or child and or their doctor being the responsible parties for any decision to undertake any medical treatments. The advice offered by Jack is merely as to the establishments, which may offer alternative therapies or strategies to that available in the UK.

To fund research designed to discover the causes and cure of Neuroblastoma
To fund research designed to discover the causes and cure of Neuroblastoma. Such research maybe conducted anywhere provided there was no automatic bar to families with United Kingdom nationality being treated at the facility or it’s relevant medical facility.

In addressing the intentions as set out above it will be the trustee’s responsibility for any decision to support or not any application made in the context of either aspect.

An Emergency grant is available for Neuroblastoma families facing financial loss or increased costs because of Coronavirus measures.

Funds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma (low, intermediate or high-risk), who face financial loss or increased costs due to the Coronavirus pandemic.

Guidelines have been issued by the Children’s Cancer and Leukaemia Group asking that families of children and young people on active cancer treatment, or within 6 months following the completion of treatment, stay at home for the next 12 weeks. These guidelines are being reviewed and updated on an ongoing basis. This is in line with the government guidance.

Parents / Guardians who are self-isolating alongside the child and that suffer financial loss or increased costs as a result may apply to the emergency fund for an initial grant towards their immediate subsistence costs.

Emergency grants of £250 are available now for those who are facing financial loss or increased costs as a result of the need of their child to stay home for the stated 12 weeks.

Additional support may be made available at a later stage for families facing acute financial loss because of the rapidly evolving public health crisis.

Criteria for accessing the grant is as follows;

You are the guardian of a child with Neuroblastoma (low, intermediate or high-risk) who is currently in active treatment, or within 6 months following the completion of treatment (at the point of application).
You have suffered financial loss or increased costs as a result of the need to self-isolate with your child which cannot be remedied by the emergency measures in place which can be found on the government website which is being continually updated. Also here.

To apply for the £250 emergency grant simply complete the form below and submit it by email to familygrant@solvingkidscancer.org.uk along with a copy of a letter or other documentary evidence from your Clinician or Medical institution which provides evidence of the active treatment of your child or treatment within the last six months (of the date of application).

We, at JACK, are thankful for the ability to provide money alongside SKC to the emergency fund for families. We are grateful to Solving Kids Cancer UK for administering the process and applications for the grant must be made via the email to Solving Kids Cancer.