In a landmark in paediatric oncology research, children with high-risk Neuroblastoma across Europe and North America will be treated together for the first time, following the award of $1.3M to fund a new trans- Atlantic clinical trial led by Dr Yael Mosse of Children’s Hospital of Philadelphia and Dr Diminique Valteau-Couanet of Instituate Gustave Roussy in France, investigating the ALK inhibitor Loriatinib in the treatment of children with newly diagnosed high-risk Neuroblastoma, a deadly … [Read more...]
Solving Kids’ Cancer and Joining Against Cancer in Kids (J-A-C-K) Neuroblastoma Collaboration
Solving Kids’ Cancer and Joining Against Cancer in Kids (J-A-C-K) are collaborating to support children affected by high-risk neuroblastoma and their families. In this initial trial project, J-A-C-K will donate £50,000 to contribute to the cost of transport, accommodation and subsistence for children and families traveling abroad to access novel and innovative neuroblastoma treatments at Memorial Sloan-Kettering Cancer Center (New York) and Hospital Sant Joan de Déu (Barcelona). Often, … [Read more...]
Transatlantic Clinical Trial for Children with Neuroblastoma
TRANSATLANTIC CLINICAL TRIAL FOR CHILDREN WITH NEUROBLASTOMA IS OPEN FOR ENROLLMENT IN THE U.K. - SOON TO OPEN IN THE U.S. AND GERMANY Charities Collaborate to Initiate International Phase 1 Clinical Trial for Children with Neuroblastoma Band of Parents, Joining Against Cancer in Kids (J-A-C-K), Solving Kids’ Cancer Europe, and Solving Kids’ Cancer U.S., have partnered to advance new treatment options for children with neuroblastoma with the launch of a transatlantic Phase 1 clinical trial … [Read more...]
Cancer drug for children recommended after becoming cost effective for NHS patients
National Institute for Health and Care Excellence (NICE) has recommended dinutuximab beta for treatment of high-risk neuroblastoma – a rare type of cancer that mainly affects children and young people – in final draft technology appraisal guidance published today. It will be given to patients aged 12 months or over whose disease has at least partially responded to first stage chemotherapy, followed by myeloablative therapy and stem cell transplant but only if they have not … [Read more...]
Joint statement in response to NICE’s preliminary decision on Anti-GD2 antibody therapy dinutuximab beta for NHS clinical use.
Joint statement in response to NICE’s preliminary decision on Anti-GD2 antibody therapy dinutuximab beta for NHS clinical use. From Solving Kids’ Cancer, Neuroblastoma UK, the Children’s Cancer and Leukaemia group, JACK, The Bradley Lowery Foundation, Hugs from Henry, Christopher’s Smile, Niamh’s Next Steps and Smile with Siddy. Charities and Clinicians that support children with high-risk neuroblastoma and their families have joined together in response to the decision not to recommend a … [Read more...]
Paediatric Molecular Radiotherapy at UCLH
Paediatric Molecular Radiotherapy at UCLH by Matthew Aldridge, University College London Hospitals NHS Foundation Trust I have been working at UCLH for 12 years and have always been involved with the diagnosis and treatment of neuroblastoma, amongst all other aspects of nuclear medicine and radiotherapy. I was part of the team that treated Jack using Molecular Radiotherapy in 2007, and at this time met Richard and Yvonne Brown. In subsequent years, I learnt about the charity and the … [Read more...]
Quiz Night to Support Jack’s PACK 2018
Police Constable Belinda Goodwin , her husband Chief Inspector John Goodwin, Brian Meyer (Store Manager for our local Tesco), and his wife Vicky are holding a Quiz Night in aid of Jack’s PACK 2018 . All are Pack members this year and previous pack members and will be traveling with us to NY in May. May we wish them good luck for the evening. … [Read more...]
Neuroblastoma Parent Education Conference
Neuroblastoma Parent Education Conference November 2017 I hope that, which is contained below, gives a flavour and some insight into the Neuroblastoma, [NB], Parents Conference 2017. It is written by Richard Brown, who attended on both days with trustees from JACK. He has shared the document with the hosts, [SKC]. Richard apologises for any omissions or inaccuracies. For some small portions of the event was not present in the events hall. This conference was organised by Solving Kids Cancer, … [Read more...]
