Joint statement in response to NICE’s preliminary decision on Anti-GD2 antibody therapy dinutuximab beta for NHS clinical use. From Solving Kids’ Cancer, Neuroblastoma UK, the Children’s Cancer and Leukaemia group, JACK, The Bradley Lowery Foundation, Hugs from Henry, Christopher’s Smile, Niamh’s Next Steps and Smile with Siddy. Charities and Clinicians that support children with high-risk neuroblastoma and their families have joined together in response to the decision not to recommend a … [Read more...]
Paediatric Molecular Radiotherapy at UCLH
Paediatric Molecular Radiotherapy at UCLH by Matthew Aldridge, University College London Hospitals NHS Foundation Trust I have been working at UCLH for 12 years and have always been involved with the diagnosis and treatment of neuroblastoma, amongst all other aspects of nuclear medicine and radiotherapy. I was part of the team that treated Jack using Molecular Radiotherapy in 2007, and at this time met Richard and Yvonne Brown. In subsequent years, I learnt about the charity and the … [Read more...]
2017 Children’s Hero Award Mark Edwards MBE
Three Strohm Sisters Family Foundation partners law enforcement members to raise money to fund research into paediatric cancer. They hold an annual Gala in NY each year and honour specific members of law enforcement for individual efforts in their efforts to support such causes. This year, JACK board member Mark Edwards, MBE, was awarded the 2017 Children’s Hero Award. The Three Strohm Sisters Family Foundation is a non-profit organization founded in 1999 by three sisters, all of whom were … [Read more...]
Neuroblastoma Parent Education Conference
Neuroblastoma Parent Education Conference November 2017 I hope that, which is contained below, gives a flavour and some insight into the Neuroblastoma, [NB], Parents Conference 2017. It is written by Richard Brown, who attended on both days with trustees from JACK. He has shared the document with the hosts, [SKC]. Richard apologises for any omissions or inaccuracies. For some small portions of the event was not present in the events hall. This conference was organised by Solving Kids Cancer, … [Read more...]
Summary of the current trial being funded by J-A-C-K at UCHL
In 2015 J-A-C-K were delighted to provide funding for a trial to be conducted at University College Hospital NHS Foundation Trust. The Trust has specific and specialised facilities and staff for using molecular radiotherapy in order to help treat Neuroblastoma. JACK provided for a grant in order to employ a research scientist who could explore aspects of dosage, [‘dosimetry’], associated with the use of 177-Lutetium DOTATATE, (LuDO), involving children being treated for Neuroblastoma. In … [Read more...]
Stem-cell transplant is next challenge for Maine toddler fighting cancer
BRUNSWICK, Maine — Six weeks after doctors removed an orange-sized tumor from Madison Arndt’s belly, the 2-year-old will be admitted to Boston Children’s Hospital early next month to undergo a stem-cell transplant. Doctors, along with a growing group of supporters in Brunswick and around the country, hope the transplant will put an end to the Stage III high-risk neuroblastoma, a cancer diagnosed in Madison in July. After an eight- to nine-hour surgery on Nov. 23, during which doctors also … [Read more...]
Nuclear protein causes neuroblastoma to become more aggressive
From: MedicalXpress.com Aggressive forms of neuroblastoma contain a specific protein in their cells' nuclei that is not found in the nuclei of more benign forms of the cancer, and the discovery, made through research from the University of Rochester Medical Center (URMC), could lead to new forms of targeted therapy. EYA1, a protein that contributes to ear development, is present in the cytoplasm of many neuroblastoma tumors, but this protein migrates to the nucleus in the cells of more … [Read more...]
Children’s Neuroblastoma Cancer Foundation Fundraiser Sept. 20 in Chicago
Originally posted in Daily Herald Children’s Neuroblastoma Cancer Foundation During Childhood Cancer Awareness Month, neuroblastoma, an aggressive childhood cancer, will be the focus of the #20forhope social media campaign created to raise research dollars and awareness of a disease more common in infants than leukemia but sorely lacking in funding. On Tuesday, Sept. 20, people everywhere -- best buddies, neighbors, co-workers, dance troupes and cast members -- are being … [Read more...]
Kian Musgrove Update
From: Mirror Little Kian Musgrove flew back out to New York at the weekend as US medics desperately try to find a way of saving the four-year-old. A family has been left with fresh heartache after a sick four-year-old boy's body rejected life-saving cancer-killing treatment in America. The news has come as a massive blow after Kian and mum Kat Driscoll only returned from America days ago. The money for the family’s travel came from music mogul Cowell, who was moved by Kian’s fight … [Read more...]
Eliza Donnelly Support
From Western Telegraph: A Newport couple is hoping to raise £60,000 to fund treatment for their two-year-old daughter, diagnosed with a rare form of childhood cancer. Eliza Donnelly was diagnosed with stage 4 Neuroblastoma in July. This is a rare cancer of specialised nerve cells, diagnosed in less than a 100 children a year in the UK. In Eliza's case the cancer has spread throughout her body and into her bone marrow. They spent most of the summer in Noah's Ark Children's Hospital where … [Read more...]
