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Joining Against Cancer in Kids

Landmark Trans-Atlantic Trial for Children with High-Risk Neuroblastoma

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In a landmark in paediatric oncology research, children with high-risk Neuroblastoma across Europe and North America will be treated together for the first time, following the award of $1.3M to fund a new trans- Atlantic clinical trial led by Dr Yael Mosse of Children’s Hospital of Philadelphia and Dr Diminique Valteau-Couanet of Instituate Gustave Roussy in France, investigating the ALK inhibitor Loriatinib in the treatment of children with newly diagnosed high-risk Neuroblastoma, a deadly … [Read more...]

Solving Kids’ Cancer and Joining Against Cancer in Kids (J-A-C-K) Neuroblastoma Collaboration

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Solving Kids’ Cancer and Joining Against Cancer in Kids (J-A-C-K) are collaborating to support children affected by high-risk neuroblastoma and their families. In this initial trial project, J-A-C-K will donate £50,000 to contribute to the cost of transport, accommodation and subsistence for children and families traveling abroad to access novel and innovative neuroblastoma treatments at Memorial Sloan-Kettering Cancer Center (New York) and Hospital Sant Joan de Déu (Barcelona). Often, … [Read more...]

Joint statement in response to NICE’s preliminary decision on Anti-GD2 antibody therapy dinutuximab beta for NHS clinical use.

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Joint statement in response to NICE’s preliminary decision on Anti-GD2 antibody therapy dinutuximab beta for NHS clinical use. From Solving Kids’ Cancer, Neuroblastoma UK, the Children’s Cancer and Leukaemia group, JACK, The Bradley Lowery Foundation, Hugs from Henry, Christopher’s Smile, Niamh’s Next Steps and Smile with Siddy. Charities and Clinicians that support children with high-risk neuroblastoma and their families have joined together in response to the decision not to recommend a … [Read more...]

Paediatric Molecular Radiotherapy at UCLH

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Paediatric Molecular Radiotherapy at UCLH by Matthew Aldridge, University College London Hospitals NHS Foundation Trust I have been working at UCLH for 12 years and have always been involved with the diagnosis and treatment of neuroblastoma, amongst all other aspects of nuclear medicine and radiotherapy. I was part of the team that treated Jack using Molecular Radiotherapy in 2007, and at this time met Richard and Yvonne Brown. In subsequent years, I learnt about the charity and the … [Read more...]

2017 Children’s Hero Award Mark Edwards MBE

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Three Strohm Sisters Family Foundation partners law enforcement members to raise money to fund research into paediatric cancer. They hold an annual Gala in NY each year and honour specific members of law enforcement for individual efforts in their efforts to support such causes. This year, JACK board member Mark Edwards, MBE, was awarded the 2017 Children’s Hero Award.  The Three Strohm Sisters Family Foundation is a non-profit organization founded in 1999 by three sisters, all of whom were … [Read more...]

Neuroblastoma Parent Education Conference

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Neuroblastoma Parent Education Conference November 2017 I hope that, which is contained below, gives a flavour and some insight into the Neuroblastoma, [NB], Parents Conference 2017. It is written by Richard Brown, who attended on both days with trustees from JACK. He has shared the document with the hosts, [SKC]. Richard apologises for any omissions or inaccuracies. For some small portions of the event was not present in the events hall. This conference was organised by Solving Kids Cancer, … [Read more...]

Summary of the current trial being funded by J-A-C-K at UCHL

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In 2015 J-A-C-K were delighted to provide funding for a trial to be conducted at University College Hospital NHS Foundation Trust. The Trust has specific and specialised facilities and staff for using molecular radiotherapy in order to help treat Neuroblastoma. JACK provided for a grant in order to employ a research scientist who could explore aspects of dosage, [‘dosimetry’], associated with the use of 177-Lutetium DOTATATE, (LuDO), involving children being treated for Neuroblastoma. In … [Read more...]

Stem-cell transplant is next challenge for Maine toddler fighting cancer

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BRUNSWICK, Maine — Six weeks after doctors removed an orange-sized tumor from Madison Arndt’s belly, the 2-year-old will be admitted to Boston Children’s Hospital early next month to undergo a stem-cell transplant. Doctors, along with a growing group of supporters in Brunswick and around the country, hope the transplant will put an end to the Stage III high-risk neuroblastoma, a cancer diagnosed in Madison in July. After an eight- to nine-hour surgery on Nov. 23, during which doctors also … [Read more...]

Nuclear protein causes neuroblastoma to become more aggressive

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From: MedicalXpress.com Aggressive forms of neuroblastoma contain a specific protein in their cells' nuclei that is not found in the nuclei of more benign forms of the cancer, and the discovery, made through research from the University of Rochester Medical Center (URMC), could lead to new forms of targeted therapy. EYA1, a protein that contributes to ear development, is present in the cytoplasm of many neuroblastoma tumors, but this protein migrates to the nucleus in the cells of more … [Read more...]

Children’s Neuroblastoma Cancer Foundation Fundraiser Sept. 20 in Chicago

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Originally posted in Daily Herald Children’s Neuroblastoma Cancer Foundation During Childhood Cancer Awareness Month, neuroblastoma, an aggressive childhood cancer, will be the focus of the #20forhope social media campaign created to raise research dollars and awareness of a disease more common in infants than leukemia but sorely lacking in funding. On Tuesday, Sept. 20, people everywhere -- best buddies, neighbors, co-workers, dance troupes and cast members -- are being … [Read more...]

Jack Brown

Jack Brown
Emergency Grant for Neuroblastoma FamiliesFunds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma

An Emergency grant is available for Neuroblastoma families facing financial loss or increased costs because of Coronavirus measures.

Funds have been made available by J-A-C-K and Solving Kids’ Cancer to help families in the UK affected by Neuroblastoma (low, intermediate or high-risk), who face financial loss or increased costs due to the Coronavirus pandemic.

Guidelines have been issued by the Children’s Cancer and Leukaemia Group asking that families of children and young people on active cancer treatment, or within 6 months following the completion of treatment, stay at home for the next 12 weeks. These guidelines are being reviewed and updated on an ongoing basis. This is in line with the government guidance.

Parents / Guardians who are self-isolating alongside the child and that suffer financial loss or increased costs as a result may apply to the emergency fund for an initial grant towards their immediate subsistence costs.

Emergency grants of £250 are available now for those who are facing financial loss or increased costs as a result of the need of their child to stay home for the stated 12 weeks.

Additional support may be made available at a later stage for families facing acute financial loss because of the rapidly evolving public health crisis.

Criteria for accessing the grant is as follows;

  • You are the guardian of a child with Neuroblastoma (low, intermediate or high-risk) who is currently in active treatment, or within 6 months following the completion of treatment (at the point of application).
  • You have suffered financial loss or increased costs as a result of the need to self-isolate with your child which cannot be remedied by the emergency measures in place which can be found on the government website which is being continually updated. Also here.

To apply for the £250 emergency grant simply complete the form below and submit it by email to familygrant@solvingkidscancer.org.uk along with a copy of a letter or other documentary evidence from your Clinician or Medical institution which provides evidence of the active treatment of your child or treatment within the last six months (of the date of application).

We, at JACK, are thankful for the ability to provide money alongside SKC to the emergency fund for families. We are grateful to Solving Kids Cancer UK for administering the process and applications for the grant must be made via the email to Solving Kids Cancer.